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Preface

Michele Angelo Petrone’s paintings of his cancer journey give a clear insight into the uncertainty, isolation and pain experienced by people with cancer. They also show the importance of the support and care which is given to cancer patients.

Michele Petrone demonstrates the power of the arts as a channel for communication. It would be difficult for anyone who sees his work not to be touched by it. I believe that his paintings have a valuable role in educating health professionals and society more widely about the emotional aspects of cancer.

Professor Mike Richards
National Cancer Director

Foreword

Enormous advances have been made in the past decade in the treatment of cancer. Thanks to earlier detection through screening and better diagnostic methods, together with an impressive array of different treatments, more and more people have a realistic chance of cure or at least of living well and for longer with their disease. Despite this, the word cancer fills most of us with dread. Survey after survey shows it to be one of the most feared diseases. Merely facing the knowledge of having a life threatening disease, let alone dealing with the physical effects and assaults of treatment, stretches most people to their limits. The emotional pain of family and friends also can be agony as they struggle to find ways of helping their suffering loved ones.

The healthcare professionals who witness this physical and emotional pain on a daily basis may respond in a variety of ways. A few become so inured to it all that they become indifferent and unmoved, while others may adopt a cool, professional detachment as their only means of coping. Some experience considerable psychological difficulties and emotional burnout themselves and seek solace in dysfunctional and unhelpful ways.

So cancer potentially affects everyone, the patient, family and friends and healthcare professionals trying to help. As we have become more high-tech in our treatments we have sometimes forgotten how to be high-touch as well. Listening to clinicians discussing cancer at conferences I sometimes feel that they understand far more about the characteristics of individual cancer cells than they do about the people unfortunate enough to harbour them. They know and acknowledge even less about the psychological costs that cancer and its treatment imposes on us all. Those of us who work within oncology are sometimes surprisingly inarticulate at expressing the emotional triumphs and tragedies that will be part of anyone's cancer journey. As Virginia Woolf once observed in an essay entitled On being ill, “If someone falls in love then they have Shakespeare or Keats to speak for them, but let one try to explain pain and language at once runs dry.”

So to capture what cancer really means to all those affected we need other modes of expression such as the powerful and deeply moving paintings by Michele Angelo Petrone. The first time that I heard and saw Michele's 'Emotional Cancer Journey' I was sitting next to a world famous cancer expert, a man with a reputation for his own brilliant oratory skills, impressive contributions to cancer research and who could launch quite vitriolic attacks on other speakers at meetings. He seemed quite agitated during Michele's talk which both worried and puzzled me until I realised that he was desperately searching for a handkerchief as he had been moved to tears.

Michele has found a means of touching us all whatever our connection with cancer, in a way that graphs and statistics cannot. His own art and the prose that accompanies it, changes the way people feel and view the disease. Self-awareness is part of the process of coping with cancer. The workshops that he has been conducting where patients, carers and others are encouraged to give expression to their feelings through art, even if they have never painted, drawn or sculpted before, can free people up in quite dramatic ways. There are many potential therapeutic gains for patients and their families and it is encouraging that our more enlightened medical and nurse training schools now recognise that including medical humanities in the curricula has benefits for all.

'The Emotional Cancer Journey' is hopefully just the start of another journey for us all into gaining not only a greater insight into what cancer meant for one amazing individual, but also into a deeper analysis of our own willingness and ability to share the feelings that cancer generates in ourselves and others.

Professor Lesley Fallowfield
Cancer Research UK Psychosocial-Oncology Group

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